by AdminRRD | Sep 7, 2026 | News
The inaugural Global PCD Conference brought together clinicians, researchers and patient organisations from across the world for the first time. Building on the foundations laid by the BEAT‑PCD network since 2015, this landmark meeting united BEAT‑PCD, the PCD...
by Colin Usher | Apr 2, 2026 | News
Rare respiratory diseases have long existed in the margins: too uncommon to attract sustained investment, too complex to solve in isolation, and too often invisible to the systems designed to support patients. Fortunately, that is beginning to change. The convergence...
by Colin Usher | Mar 27, 2026 | News
What a week of community, conversation and collaboration! Over two days and three events, we brought researchers, advisors, partners and clinical colleagues together in London to celebrate successes, share ideas and look to the future. As always, we had our eyes on...
by Colin Usher | Feb 28, 2026 | News
Equity isn’t about giving everyone the same treatment. It’s about levelling the playing field and making sure everyone gets what they need to thrive. But what does equity look like when it comes to health? And what is the Centre doing to...
by AdminRRD | Jan 21, 2026 | News
How can we ensure that scientific discovery translates to viable treatment within the fragile rare-disease ecosystem? Which ideas and innovations could create momentum and drive sustainable improvement against a complex backdrop of regulatory, financial and policy...
by Colin Usher | Sep 5, 2025 | News
The LifeArc Centre for Rare Respiratory Diseases celebrated its first anniversary with a landmark annual gathering in London. The gathering brought together researchers, clinicians and patient partners to share progress, spark collaboration and strengthen the vital...
