Working together to tackle rare disease
Our Centre is a ground-breaking consortium of universities that collaborates with patients, patient organisations, NHS clinical care sites and non-profits across the UK. By coming together, we benefit from a wealth of collective expertise across the UK and have a stronger voice with policymakers, regulators and funders. Our work is grounded in the needs and priorities of people with lived experience of rare respiratory diseases.
Our partners
Learn about our university, NHS and patient-group partners
Our patient network
Learn how we involve people who have lived experience of these conditions
Our funder and LifeArc Centres
Learn about LifeArc and the four Translation Centres for Rare Disease
Our team and governance
Meet the members of our team and learn how the Centre is organised
“I hope that this fantastic collaboration brings about new discoveries faster than a singular research group approach, and that these translate into real change for patients living with rare respiratory disease.”