News and stories
With a team that spans universities, NHS sites and patient-advocacy groups, and aims to improve every aspect of rare respiratory research and patient care, there’s always something going on at the LifeArc Centre for Rare Respiratory Diseases.
Roadmap for Rare
Our Roadmap for Rare event brought together rare disease experts and advocates to ask whether we can move fast enough, and together enough, to drive real progress for people affected by rare conditions.
Coming together for rare: two days, three events, one goal
What a week of community, conversation and collaboration! Over two days and three events, we brought researchers, advisors, partners and clinical colleagues together in London to celebrate successes, share ideas and look to the future. As always, we had our eyes on...
Rare Disease Day 2026: it’s all about equity
In 2026, Rare Disease Day is focusing on equity. Learn what equity means to us.
Roadmap for Rare: accelerating translation across the rare disease ecosystem
Join us in London on 26 March for an engaging day of practical insights, in-depth debates and candid discussions around shared translational challenges.
Centre for Rare Respiratory Diseases celebrates its science, voices and impact
Opening remarks from LifeArc CEO Dr Sam Barrell set the tone for a day of discussion and inspiration.
New Events
We’d like to spotlight on PCD Awareness Month – October 2025This October, some of the Centre’s researchers will join partners across Europe in raising awareness of Primary Ciliary Dyskinesia (PCD), a rare and often under-diagnosed condition. The month is about: A...
Annual Gathering
“From launching our first Lived Experience Advisory Board to preparing the foundations for the UK’s first rare respiratory disease biobank, it’s been a busy summer. On 2–3 September 2025 at Mary Ward House London, we will host our first Annual Gathering at Mary Ward...
Our First 12 Months of Success
Since launching in September 2024, the LifeArc Centre for Rare Respiratory Diseases has made significant strides in establishing a strong foundation for discovery, collaboration, and impact. One of our early successes has been building the Centre’s team. Across the UK...