How can we ensure that scientific discovery translates to viable treatment within the fragile rare-disease ecosystem? Which ideas and innovations could create momentum and drive sustainable improvement against a complex backdrop of regulatory, financial and policy challenges? How can LifeArc’s translational centres for rare disease deliver new impetus to the shared search for practical solutions?
Join leading UK and international voices from research, clinical practice, industry, regulation, government, investment, and patient organisations for an engaging day of practical insights, in-depth debates and candid discussions. Participants will explore innovations, experiences and actions that have the potential to drive financially viable, sustainable change for rare disease patients, the NHS, and the UK economy. Key themes include patient identification, bioresources for discovery, clinical trial design and regulation, and the partnerships and resources needed to deliver therapies to patients.
This event is organised by the LifeArc Centre for Rare Respiratory Diseases, which brings together patients, researchers, clinicians and industry across the UK to accelerate the discovery, development and delivery of life-changing therapies for people living with rare respiratory diseases. The Centre is one of four virtual, translational centres that were launched in late 2024 by LifeArc, a not-for-profit life science organisation, to tackle common roadblocks across rare diseases. By accelerating collaboration around rare respiratory diseases within our Centre, and leveraging rare disease expertise and synergies across the LifeArc network and beyond, we can improve translation, outcomes and lived experience for everyone.
Date: Thursday 26/03/2026
Time: 9:00 – 16:30
Venue: Kings Place, 90 York Way, London, N1 9AG
Participation at this event is by invitation only. Please register your interest here.