by Colin Usher | Aug 21, 2025
Biographies Team Members Bradley PriceLeadership Team Member, Lived Experience Advisory Panel Full biography to follow Back to team...
by Colin Usher | Aug 12, 2025
BiographiesTeam Members Philippa ThomasPatient Group Representative Philippa Thomas has the rare lung disease LAM. She sits on the Centre’s Patient Advisory Board. Her role is to work with other patients to reflect lived realities, help coordinate with patient...
by Colin Usher | Aug 4, 2025
BiographiesTeam Members Katie DexterPatient Group Representative Katie Dexter is a patient advocate for the rare genetic condition Primary Ciliary Dyskinesia (PCD). Katie was diagnosed with PCD in her late teens after many years of misdiagnosis. Katie has been...
by Colin Usher | Aug 4, 2025
BiographiesTeam Members Dr Harriet HolmePatient Group Representative Dr Harriet Holme is founder and Executive Chair of PCD Research, the first and only charity world wide to fund scientific research for Primary Ciliary Dyskinesia, with the aim of disease...
by Colin Usher | Aug 4, 2025
BiographiesTeam Members Gill HollisPatient Group Representative Gill Hollis has a background in law and investment, but in 1992, aged 27, she was diagnosed with the rare lung condition LAM. At that time, little was known about LAM, no treatments were available and...
