by Colin Usher | Aug 4, 2025
BiographiesTeam Members Gill HollisPatient Group Representative Gill Hollis has a background in law and investment, but in 1992, aged 27, she was diagnosed with the rare lung condition LAM. At that time, little was known about LAM, no treatments were available and...
by Colin Usher | Aug 4, 2025
BiographiesTeam Members Fiona CopelandPatient advocate for PCD Fiona Copeland is a patient advocate for PCD. She is Mum to two adult children who both have a rare genetic condition called Primary Ciliary Dyskinesia (PCD). She chaired the PCD Support Group between 2005...
by Colin Usher | Aug 4, 2025
BiographiesTeam Members Clare LyonPatient Group Representative Clare Lyon is a LAM patient and Trustee for LAM Action. Using her lived experience as a patient with a rare disease and knowledge from her work life, she is pleased to support the LifeArc Centre for Rare...
