by Colin Usher | Feb 28, 2026 | News
Equity isn’t about giving everyone the same treatment. It’s about levelling the playing field and making sure everyone gets what they need to thrive. But what does equity look like when it comes to health? And what is the Centre doing to...
by AdminRRD | Jan 21, 2026 | News
How can we ensure that scientific discovery translates to viable treatment within the fragile rare-disease ecosystem? Which ideas and innovations could create momentum and drive sustainable improvement against a complex backdrop of regulatory, financial and policy...
by Colin Usher | Sep 5, 2025 | News
The LifeArc Centre for Rare Respiratory Diseases celebrated its first anniversary with a landmark annual gathering in London. The gathering brought together researchers, clinicians and patient partners to share progress, spark collaboration and strengthen the vital...
by Colin Usher | Aug 21, 2025 | News
We’d like to spotlight on PCD Awareness Month – October 2025This October, some of the Centre’s researchers will join partners across Europe in raising awareness of Primary Ciliary Dyskinesia (PCD), a rare and often under-diagnosed condition. The month is about: A...
by Colin Usher | Aug 21, 2025 | News
“From launching our first Lived Experience Advisory Board to preparing the foundations for the UK’s first rare respiratory disease biobank, it’s been a busy summer. On 2–3 September 2025 at Mary Ward House London, we will host our first Annual Gathering at Mary Ward...
by Colin Usher | Aug 21, 2025 | News
Since launching in September 2024, the LifeArc Centre for Rare Respiratory Diseases has made significant strides in establishing a strong foundation for discovery, collaboration, and impact. One of our early successes has been building the Centre’s team. Across the UK...
