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Roadmap for Rare: accelerating translation across the rare disease ecosystem 

Roadmap for Rare: accelerating translation across the rare disease ecosystem 

by AdminRRD | Jan 21, 2026 | News

  How can we ensure that scientific discovery translates to viable treatment within the fragile rare-disease ecosystem? Which ideas and innovations could create momentum and drive sustainable improvement against a complex backdrop of regulatory, financial and...

About the LifeArc Centre for Rare Respiratory Diseases

We bring together patients, researchers, clinicians and industry partners from across the UK to accelerate the discovery, development and delivery of life-changing resources, diagnostics and therapeutics for people who live with rare respiratory diseases.

We’re funded by LifeArc, a not-for-profit life science organisation that turns promising scientific research into positive impact.

We welcome ideas, input and potential partners.

Consortium universities

University of Cambridge
University of Dundee
University of Edinburgh
University of Nottingham
University of Southampton
University College London 

Contact us

Institute for Regeneration and Repair
University of Edinburgh
4-5 Little France Drive
Edinburgh
EH16 4UU

For general enquiries
RRD-Centre@ed.ac.uk

For patient and patient group enquiries
RRD-PPIETeam@ed.ac.uk

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