We’d like to spotlight on PCD Awareness Month – October 2025
This October, some of the Centre’s researchers will join partners across Europe in raising awareness of Primary Ciliary Dyskinesia (PCD), a rare and often under-diagnosed condition. The month is about:
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- A co-ordinated campaign with BEAT-PCD and UK patient groups to shine a light on PCD diagnosis, research progress, and patient stories.
- Our researchers and clinicians will share insights on genetics, diagnosis, and new therapies through their blogs, webinars, and social media.
- The campaign will culminate in the Annual PCD Patient Conference on 29 November 2025, a chance for families, researchers, and clinicians to connect, share experiences, and hear the latest updates.
- A co-ordinated campaign with BEAT-PCD and UK patient groups to shine a light on PCD diagnosis, research progress, and patient stories.
- Highlights from the Centre community
- Researchers from our Centre have recently delivered keynote talks at international conferences in the US, Italy, and the UK.
- Our team is working with global partners like Decipher and the Open Source Imaging Consortium (OSIC) to improve access to genetic and imaging databases for rare respiratory disease research.
- Researchers from our Centre have recently delivered keynote talks at international conferences in the US, Italy, and the UK.
- Looking ahead – new events
- The European Respiratory Society (ERS) Conference, September 2025 – will be attended by the Centre’s researchers.
- We’re delighted to announce that the Centre will host a dedicated symposium at the British Thoracic Society Winter Meeting 2025.
- The European Respiratory Society (ERS) Conference, September 2025 – will be attended by the Centre’s researchers.
The session will showcase the Centre’s mission and cutting-edge science, featuring talks on:
- Rare disease phenotyping and genotyping in adults and children
- Translational disease modelling
- Applying gene therapy to rare lung diseases
- Studying drug action in the human lung
- The central role of patient voices in shaping research
This is a key opportunity to share our progress with the wider respiratory community, strengthen clinical networks, and highlight the importance of rare diseases in advancing therapies for all lung conditions.
