by Colin Usher | Aug 4, 2025
BiographiesTeam Members Fiona CopelandPatient advocate for PCD Fiona Copeland is a patient advocate for PCD. She is Mum to two adult children who both have a rare genetic condition called Primary Ciliary Dyskinesia (PCD). She chaired the PCD Support Group between 2005...
by Colin Usher | Aug 4, 2025
BiographiesTeam Members Clare LyonPatient Group Representative Clare Lyon is a LAM patient and Trustee for LAM Action. Using her lived experience as a patient with a rare disease and knowledge from her work life, she is pleased to support the LifeArc Centre for Rare...
