Patients and patient organisations
– Collaborate with us
Your voice shapes our research
The Centre is co-designed with patients, carers, and advocacy groups to ensure that lived experience drives everything we do-from identifying research priorities to developing new therapies.
Ways you can collaborate
Enquire about our new Lived Experience Advisory Panel (LEAP)
Help shape our values, priorities, and progress as a patient or patient organisation representative.
Share your experience
Take part in our qualitative research to help us better understand the realities of diagnosis, treatment, and daily life with RRDs.
Participate in research
Join our registry and consent to be contacted about research opportunities relevant to your condition.
Access resources
Benefit from educational materials and webinars developed with and for patients and carers.
Raise awareness
Partner with us to advocate for increased understanding and funding for rare respiratory diseases.
Inclusion and equity matter to us
We’re actively working to connect with underrepresented communities and disadvantaged groups – using both in-person and digital engagement approaches.