Biographies
Team Members

Fiona Copeland
Patient advocate for PCD

Fiona Copeland is a patient advocate for PCD. She is Mum to two adult children who both have a rare genetic condition called Primary Ciliary Dyskinesia (PCD). She chaired the PCD Support Group between 2005 and 2021 where she helped transform the care of patients with PCD in the UK and contributed to global change in diagnostics and management of PCD.

She is a trustee of the Ciliopathy Alliance bringing together patient support groups, researchers and clinicians working with families affected by ciliopathies. She also promotes, chairs, and directs a large variety of national committees, groups and advisory boards working to promote knowledge and development of genetic disorders, blindness, cancer support, and health research. She has co-written numerous academic papers on PCD.

She will be the Patient Advocate co-representing the PCD Support Group on this project with Katie Dexter.

In her spare time Fiona enjoys running, reading, singing, watching Northampton Saints Rugby Team, F1 and travelling.